Thaddeus Mason Pope

Bioethics, Health Law, Patient Rights

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Patient Decision Aids
The following fourteen organizations develop or collect patient decision aids for English speaking patients. They are listed in alphabetical order. PDAs are evidence-based educational tools help patients make more value-congruent choices about their healthcare.

ACP Decisions
ACP Decisions has a video library of close to 500 videos in 25 different languages. They address a range of issues in four categories: Video Decision Aids, Free Standing Educational Videos, Caregiver Videos, and Training and Implementation Videos.

American College of Cardiology
The American College of Cardiology has created decision aids for people with: atrial fibrillation considering blood thinners or left atrial appendage closure to prevent strokes, aortic stenosis considering heart valve replacement, heart failure considering medicines or devices such as an implantable cardioverter defibrillator (ICD) or left ventricular assist device (LVAD). ACC also has a suite of decision aids for ICDs to support patients considering whether to have an ICD placed.

Australian Commission on Safety & Quality in Healthcare
The Australian Commission on Safety & Quality in Healthcare has developed decision support tools for specific conditions, to help clinicians and patients share effective decision making.

CenCal Healthwise
CenCal collects Healthwise decision aids for more than a dozen different treatment decisions. 

Colorado Program for Patient Centered Decisions
The Colorado Program for Patient Centered Decisions maintains a  inventory of decision aids. Many of these are for cardiac related conditions and interventions. But some PDAs address other healthcare options like colon cancer screening and dementia.

Dartmouth Hitchcock
Dartmouth Hitchcock collects decision aids for a range of conditions and interventions.

Mayo Clinic
Mayo Clinic's Shared Decision Making National Resource Center has developed a range of PDAs that have been tested in randomized trials in usual clinical settings and comply with the latest IPDAS standards.

Massachusetts General Hospital
The mission of the MGH Health Decision Sciences Center is to create conversations and systems of care that value the expertise of patients, families, and clinicians, and incorporate the best available clinical evidence. They promote informed decisions to achieve outcomes that matter most to their patients. They collect a range of decision aids and decision worksheets here.

MD Anderson
The Decision Science department at MD Anderson Cancer Center collects decision support tools. The tools are organized across the cancer care continuum: prevention, screening, treatment and survivorship. Each tool has photos slideshow that you can browse to see screenshots of the tool. 

NHS England
NHS England collects a significant number of decision support tools. They were developed with input throughout the process from healthcare professionals, patients and the public, and presents the numbers in as clear a way as possible to help people make their own decisions about whether to choose treatments or not. 

Ottawa Hospital Research Institute
The Ottawa Hospital Research Institute maintains a searchable inventory of more than 100 decision aids for a wide variety of conditions and interventions. OHRI represents that the listed PDAs meet the widely-regarded IPDAS criteria.

Royal Australian College of General Practitioners
The The Royal Australian College of General Practitioners (RACGP) collects patient resources for some screening tests anfd treatments. 

UPMC
UPMC wants its patients to feel confident in making health related decisions. They collect patient decision aids to use during the decision making process. These  free informational tools (written, video, and web-based aids) are designed to help patients learn about their health condition and various treatment options. They also encourage patients to think about what is important to them as they make decisions about their health care.

Washington State Health Care Authority
The Washington Health Care Authority has certified more than 40 decision aids for maternity, obstetrics, joint & spine, cardiac, and end-of-life.